Care Work is essentially a mapping of access as radical love, a celebration of the work that sick and disabled queer/people of color are doing to find each other and to build power and community, and a toolkit for everyone who wants to build radically resilient, sustainable communities of liberation where no one is left behind. As white, racialized, heterosexual, queer, cis, gender-fluid members of a Disability and Mad Studies Reading Group, we are grateful for the conversations the book has provoked among us and how reading about and discussing its notions of community have helped to build community. Audio CD. Synopsis. Piepzna-Samarasinha, Leah Lakshmi. Our beliefs about what we can do?, To me, one quality of disability justice culture is that it is simultaneously beautiful and practical. A lead artist with the disability . Disability justice is often ignored. Press-published writing on Disability Justice is only beginning to emerge, marking Care Work a crucial kind of historical archive. Care Work: Dreaming Disability Justice by Leah Lakshmi Piepzna-Samarasinha. By far the most life-changing, mind-blowing, paradigm-shifting book Ive read in years-perhaps ever. Unabridged: 8 hr 8 min Format: Digital Audiobook Publisher: Tantor Media, Inc. Putting words to the overlap between ableism and misogyny was refreshing and cathartic to read. I ask if you can offer care or support; you think about whether youve got spoons and offer an honest yes, no, or maybe. And we were learning from the Civil Rights Movement and from the Women's Rights Movement. Insightful read on disability justice, and how we need to transform spaces, institutions, mindsets as well as policies and laws. This assignment is intended to encourage you, and require you . Nonfiction essays about disability justice, by disabled queer femme's of color. Explore. These essays are like mini-manifestos, passionate and . It's hard for many people to understand that disabled people. Each essay hit me differently and I feel like this wasn't the most gender binary variant inclusive text for being written by someone who is part of the queer community. disability justice] means we are not left behind; we are beloved, kindred, needed., I said I loved her. Care work: Dreaming disability justice. 2018. Topic. This page was last edited on 23 August 2021, at 16:04. Leah Lakshmi Piepzna-Samarasinha is a Toronto and Oakland-based poet, writer, educator and social activist. Care webs : experimenting in creating collective access -- Crip emotional intelligence -- Making space accessible is an act of love for our communities -- Toronto crip city : a not-so-brief, incomplete personal history of some moments in time, 1997-2015 -- Sick and crazy healer : a not-so-brief personal history of the healing justice movement -- Crip sex movements and the lust of recognition . "Care Work is a necessary intervention for those in queer/trans people-of-color spaces and white disability spaces alike, but more importantly, it's an offering of love to all of us living at multiple margins, between spaces of recognition and erasure, who desperately need what Leah has to say. People, organizations, and policy-makers are discussing disability justice at length while leaving out its necessary and original context. I feel a lot of different ways about this. Leah Lakshmi Piepzna-Samarasinha (she/they) is a nonbinary femme autistic disabled writer, space creator and disability and transformative justice movement worker of Burgher and Tamil Sri Lankan, Irish and Galician/Roma ascent.They are the author or co-editor of ten books, including The Future Is Disabled: Prophecies, Love Notes and Mourning Songs, Beyond Survival; Strategies and Stories from . The list below is a non-exhaustive list: Take yin chiao at the first sign of an illness to reduce your chances of getting sick; Gargle hot sea salt when you feel a cough coming; Melatonin or Benadryl to help you sleep when you need to; Activated charcoal to help prevent throwing up; Mason jar with half a lemon then fill with water to get electrolytes and hydration. No amount of smiling at a flight of stairs has ever made it turn into a ramp. . Collective care means shifting our organizations to be ones where people feel fine if they get sick, cry, have needs, start late because the bus broke down, move slower, ones where theres food at meetings, people work from homeand these arent things we apologize for. 2023 OCLC Domestic and international trademarks and/or service marks of OCLC, Inc. and its affiliates. Jan 12, 2021 - Feminist Coach Academy teaches helping professionals how to integrate feminism and social justice into their life, work and client practice. Loree Erickson, the fourth Ethel Louise Armstrong (ELA) Foundation postdoctoral fellowship recipient in the School of Disability Studies, is focused on several areas of research, including collective care initiatives and cultures of undesirability. Photo: Alia Youssef. In this collection of essays, Lambda Literary Award-winning writer and longtime activist and performance artist Leah Lakshmi Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centers the lives and leadership of sick and disabled queer, trans, Black, and brown people, with knowledge and gifts for all. Each person is full of history and life experience. As opposed to terms like compliance, regulation, standards, or legislation, Care Work invites the reader to long for and imagine what a liberatory future could look and feel like. RECOGNIZING WHOLENESS People have inherent worth outside of commodity relations and capitalist notions of productivity. Picture 1 of 1. Making theatre an accessible space is not necessarily taught in a theatrical or performance MFA program. 9781551527390. State-provided care can be inaccessible because of a lack of internet, shame, poor advertisement, ineligibility, or a complicated registration process. Stopping everything that happened for seven generations. ALICE: Hey, Leah. These stories are a much needed look at a section of the disabled community that has unique challenges and often don't get much of a voice. Something unprecedented and LOUD. Touch device users, explore by touch or with swipe gestures. Leah Lakshmi Piepzna-Samarasinha, organizer and author, including Care Work: Dreaming Disability Justice**:** The pandemic "cripped the world" and because of this there was a mass consciousness . Especially as a healthcare worker, delving into disability justice and depathologizing crip culture are incredibly important to me to becoming a more intersectional, trauma-informed care provider. 4.5 stars rounded up. Our fight for disability rights and why we're not done yet, I'm not your inspiration, thank you very much, https://en.wikiquote.org/w/index.php?title=Disability_justice&oldid=2998047. (and by the way, you do too, likely). We are currently working on the following: Most of our meetings are open to respectful guests. Social Sciences. Kin to environmental justice, Disability Justice is described as a movement and network of interlocking communities where disability is not defined in white terms, or male terms, or straight terms. Care Work: Dreaming Disability Justice. WorldCat is the worlds largest library catalog, helping you find library materials online. Which is what we started with, right?, Too often self-care in our organizational cultures gets translated to our individual responsibility to leave work early, go home - alone - and go take a bath, go to the gym, eat some food and go to sleep. Not have a nervous breakdown or six by twenty five. Your one-stop shop for social justice study guides. She acknowledges that while she is not an academically trained disability scholar, the goal with her writing is to provide access to information in a way that scholarly essays may not (p. 37). not fixed and living life worth living, care webs, suicidality most useful essays; others less strong. The author then describes the inaccessibility of public performance spaces. This is a piece I relate to in a lot of ways but I find really hard to read whenever the gender stuff comes up, because Leah reassigned a gender binary of "femmes" and "masculine people" without room for those of us who are different. In this collection of essays, Lambda Literary Award-winning writer and longtime activist and performance artist Leah Lakshmi Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centers the lives and leadership of sick and disabled queer, trans, Black, and brown . Disabled Mizrahi genderqueer writer and organizer Billie Rain started Sick and Disabled Queers (SDQ), a Facebook group for well, sick, and disabled queers, in 2010 (60). 53 well-meaning institutions designed on purpose to lock up, institutionalize, and "help the handicapped." Foundations have rarely ever given disabled people money to run our own shit. It wasn't written for me. Care Work is a mapping of access as radical love, a celebration of the work that sick and disabled queer/people of color are doing to find each other and to build power and community, and a tool kit for everyone who wants to build radically resilient, sustainable communities of liberation where no one is left behind. So this is our school read this year and Piepzna-Samarasinha is coming to talk at the end of this month. Copyright 2001-2023 OCLC. I learned a lot from reading this book and I think many of the ideas, especially the ones that I found provocative or controversial, will stay with me for a long time. Sick, disabled, Mad, Deaf, and neurodivergent peoples care and treatment varied according to our race, class, gender, and location, but for the most part, at best, we were able to evade capture and find ways of caring for ourselves or being cared for by our families, nations, or communitiesfrom our Black and brown communities to disabled communities., For years awaiting this apocalypse, I have worried that as sick and disabled people, we will be the ones abandoned when our cities flood. Love, gratitude, and recognition! This happens because sick and disabled and Deaf and crazy folks make it happen because they care and have the skills to make it happen (p. 154). When doing disability justice work, something to be cautious of is when care networks only emerge in response to emergencies. Do more than:Stop self-destructing. Most do not think about disability in performance spaces. A Disability Justice framework understands that all bodies are unique and essential, that all bodies have strengths and needs that must be met., Inclusion without power or leadership is tokenism., The thing I always wanted to say is that surviving abuse sucks. Everything from praying to the goddesses of transformation to help us hold these giant processes and help someone acting abusively choose to change to having cleansing ceremonies along the way., It's not about self-care - it's about collective care. Collectively-managed. An Ongoing, Virtual Care Web: Sick and Disabled Queers. -- Provided by publisher. a book i knew would completely alter my life before i was even close to finishing it. CARE WORK DREAMING DISABILITY JUSTICE. We host events in NYC and broadcast them here! However, touring is an immense privilege, even though it also causes pain to the body, that only some have. COLLECTIVE ACCESS As brown, black and queer-bodied disabled people we bring flexibility and creative nuance that go beyond able-bodied/minded normativity, to be in community with each other. Worker-run. A Dreaming Session is a gentle, 60 minute transformative audience performance centering those most impacted by systems of oppression. First, highlighting the need to develop a fair-trade emotional labour economy based on reciprocal methods of asking for and receiving (which can be difficult! And it was better than expected, in different ways. The more seasoned disabled person who comes and sits with your new crip self and lets you know the hacks you might need, holds space for your feelings, and shares the communitys stories. There was not an intuitive knowledge of all the information across other disabilities. To learn about our use of cookies and how you can manage your cookie settings, please see our Cookie Policy. Essays in Section I describe the historical and ongoing exclusion of queer and trans disabled people of colour from mainstream disability frameworks. Get help and learn more about the design. ANTI-CAPITALIST POLITIC In an economy that sees land and humans as components of profit, we are anti-capitalist by the nature of having non-conforming body/minds. In this collection of essays, Lambda Literary Award-winning writer and longtime activist and performance artist Leah Lakshmi Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centers the lives and leadership of sick and disabled queer, trans, Black, and brown people, with knowledge and gifts for all. Amazon.com: Customer reviews: Care Work: Dreaming Disability Justice We write this review as people variously located in relation to this book those who have, or are beginning to feel, love in disability communities, as well as those who are new to these possibilities. Building on the work of their game-changing book Care Work: Dreaming Disability Justice, Piepzna-Samarasinha writes about disability justice at the end of the world, documenting the many ways disabled people kept and are keeping each other - and the rest of the world - alive during Trump, fascism and the COVID-19 pandemic. Disability justice is so often left out of social justice and anti-oppression work. * Part 3 was incredibly relatable to my experiences as a ND femme community activist and organizer. Personal narratives and accounts of organizing are voiced from Black and brown and queer disabled people, radically reimagining the ways our society is . Second to last essay - on survivorship and the false broken/healed dichotomy and how applying a disability justice framework blows that wide open - in particular hit hard! Nonprofits need us as clients and get nervous about us running Care Work: Dreaming Disability Justice is a collection of visionary essays on vibrant organizing for Disability Justice that is gathering momentum across the unceded and occupied Indigenous territories in North America. Picture Information. prob would have appreciated more when this came out 2 years ago. The CCA was rooted in intersectionality to create organizing that did not leave any aspect of someones identity behind; to form a space focused on BIPOC disabled individuals caring for each other. This work destroys the structure that keeps ableism in tact. Subtopic. In the . So much packed into this book! $ 360.00. San Alland - DAO Guest Editor We especially encourage potential readers to read the book with others so that you can feel and talk and put into practice ideas of love, care, and community as you engage with Piepzna-Samarasinhas (and colleagues) carefully crafted words and visions for these things: I have worried that as sick and disabled people, we will be the ones abandoned when our cities flood. I want to live in a world where we value genuine achievement for disabled people. Our lives? As Leah writes in Care Work: Disability justice is to the disability rights movement what the environmental justice movement is to the mainstream environmental movement. Ableism, again, insists on either the supercrip (able to keep up with able-bodied club spaces, meetings, and jobs with little or no access needs) or the pathetic cripple. Obtain permissions instantly via Rightslink by clicking on the button below: If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. In their new, long-awaited collection of essays, Lambda Literary Award-winning writer and longtime disability justice activist and performance artist Leah Lakshmi Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centres the lives and leadership of sick and disabled queer, trans, Black, and brown people, with knowledge and gifts for all. I wish the book incorporated more of a structural lens (I mean, there was lots of discussion of systems of oppression) but not about erroding public health supports in a way that has made it harder and harder for low income and disabled people to access services that they need and deserve, and communities/families may not be able to provide safely and reliably. Piepzna-Samarasinha is committed to figuring out together how we can remake performance cultures expectations and figure out our own disabled and chronically ill performance ideas that allow our bodyminds to thrive (p. 191). Disability justice is a framework that examines disability and ableism as it relates to other forms of oppression and identity. This created a space where disabled people, whose identities are often marginalized in mainstream disability rights spaces, could connect with others. This article explores the politics of articulations of righteous femme anger by queer feminine affect aliens who occupy liminal spaces on the margins of feminist, queer . It is more than just having a ramp or getting disabled folks/crips into the meeting. Our Board member and Secretary wrote this lovely piece about Disability Justice to raise awareness of the upcoming National Alliance of Melanin Disabled Advocates BIPOC Leadership Summit, Our Presence Is Our Power.. Find many great new & used options and get the best deals for Dreaming of Justice, Waking to Wisdom by Laurence D. Cooper at the best online prices at eBay! Publisher. Please note, throughout theinterview, the term DJ refers to disability justice.Are you ready? Creating Collective Access (CCA) was a crip-femme-of color-made initiative dedicated to making sure a Detroit conference was accessible. This totally rocked my world. A must read for all able bodied allies wanting to learn how to help fight for a more accessible and accommodating world! Care Work Dreaming Disability Justice Leah Lakshmi Piepzna-Samarasinha. 5 Howick Place | London | SW1P 1WG. For those who are chronically ill and need to go on tour, Piepzna-Samarasinha provides a list of tips. How do I view content? See below for more information. Disability Justice puts the needs of communities and individuals who are often forgotten about, like QTBIPOC, in the forefront to focus on their needs and values them. Care Work: Dreaming Disability Justice is a collection profoundly necessary at this moment . I just finished this book and still try to gather all my thoughts. Today. Be the first to learn about new releases! Care Work: Dreaming Disability Justice by Leah Lakshmi Piepzna-Samarasinha is a collection of essays from the award-winning writer, performance artist, and longtime disability justice. It came out of generations and centuries where needed care meant being locked up, losing your human and civil rights, and being subject to abuse., Access is complex. Collective care means shifting our organizations to be ones where people feel fine if they get sick, cry, have needs, start late because the bus broke down, move slower, ones where there's food at meetings, people work from homeand these aren't things we apologize for. Register to receive personalised research and resources by email. Pginas: 263. About our name: Disability Justice Dreaming was imagined through Disability Justice cross-pollination by Rebel Sidney Fayola Black Burnett. A gift, as Leah does. It is slow. It is the way we do the work, which centers disabled-femme-of-color ways of being in the world, where many of us have often worked from our sickbeds, our kid beds, or our too-crazy-to-go-out-today beds. I loved that a Canadian put this collection together but am angry at the same time how difficult it was for her to find a publisher willing to work with her. The potential readership of Care Work is vast including disabled QTBIPOC, trauma survivors, those labouring to stay alive day to day, all of us involved in giving and receiving care, marginalized artists and writers, disability movements/studies and all intersecting movements, and those with responsibilities related to social/health/welfare service provision and disability rights legislation. Decolonize our minds, our hair, our hearts. The author lays everything out in a passionate, vulnerable, heartbreaking, hysterical way. Start by following Leah Lakshmi Piepzna-Samarasinha. Their wisdom draws from their experiences as a disabled queer femme person of color in Toronto, Seattle, and the Bay Area doing disability justice work. As a queer disabled afab person there was so much I related to, I swear it helped heal something inside of me, and as a white person there is so much that I learned from. 161 0 obj <> endobj 183 0 obj <>/Filter/FlateDecode/ID[<15A25D98F9B36046ACE3F74EA463F1FC><6A31EF12A13944418B766714C8FED0E7>]/Index[161 47]/Info 160 0 R/Length 110/Prev 185799/Root 162 0 R/Size 208/Type/XRef/W[1 3 1]>>stream Poetry and dance are as valuable as a blog post about access hacks - because they're equally important and interdependent.. These are a few examples of the many joyful intersections of disability justice, care, and pleasure that I'm really fucking lucky to have in my life. Edie finds herself caught between getting the help she needs and convincing her professor that she isn't looking for an easy out. Care Work is a mapping of access as radical love, a celebration of the work that sick and disabled queer/people of color are doing to find each other and to build power and community, and a tool kit for everyone who wants to build radically resilient, sustainable communities of liberation where no one is left behind. Exactly what I wanted and so much more! People with a variety of disabilitiesvisible and invisibleare collectively dreaming of people cuddling cats in bed surrounded by flowers, while the people cuddling cats in bed are collectively dreaming of being in community together. The disability justice framework flips this by centering access and disability in the everyday work that is already being done. You'll know you're doing it because people will show up late, someone will vomit, someone will have a panic attack, and nothing will happen on time because the ramp is broken on the supposedly "accessible" building. For more information, please visit our Permissions help page. If not, you wont, and it wont (p. 189). We are advertising this event, but we are not hosting it. In contrast to disability rights movements, which have focused on gaining inclusion in the nation-state through affirmative legislation and the redistribution of resources, Piepzna-Samarasinha critiques these strategies as exclusionary and inadequate especially for sick and disabled QTBIPOC and traces instead the everyday care webs that participants in Disability Justice knit together to meet these unmet needs. Oh, how I needed this gift of a book. 3099067 The Street Transvestite Action Revolutionaries (STAR) House stood for the was a gay, gender non-conforming and transgender street activist organization founded in 1970 by Sylvia Rivera and Marsha P. Johnson, subculturally-famous New York City drag queens of color. Ableism, coupled with white supremacy, supported by capitalism, underscored by heteropatriarchy, has rendered the vast majority of the world invalid., LEADERSHIP OF THOSE MOST IMPACTED We are led by those who most know these systems. Aurora Levins Morales. This makes care webs necessary, but it may lead to the burnout of small groups or small leaderships. So many of the movements Ive been a part of in my lifetimethe movements against wars in Afghanistan/Iraq and against Islamophobic racist violence here on Turtle Island, movements for sex work justice and for missing and murdered Indigenous women, movements led by and for trans women of color, movements for Black lives, movements by and for disabled folks and for survivors of abuseinvolve a lot of grieving and remembering people we love who have been murdered, died, or been hurt/abused/gone through really horrible shit., Although containing and denying grief is a time-honored activist practice that works for some people, I would argue that feelings of grief and trauma are not a distraction from the struggle. Care Work, an impeccably written and edited collection, does just that. Most life-changing, mind-blowing, paradigm-shifting book Ive read in years-perhaps ever, organizations, and policy-makers are disability... # x27 ; s hard for many people to understand that disabled of. 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Dreaming disability justice is so often left out of care work: dreaming disability justice quotes justice and anti-oppression Work able allies., mindsets as well as policies and laws registration process Piepzna-Samarasinha is a Toronto and poet. Already being done you can manage your cookie settings, please visit our Permissions help.! And laws body, that only some have cross-pollination by Rebel Sidney Fayola Black Burnett, explore by or... And Ongoing exclusion of queer and trans disabled people of colour from mainstream disability Rights,... To help fight for a more accessible and accommodating world each person is full of and... Civil Rights Movement, poor advertisement, ineligibility, or a complicated registration process, something be! Close to finishing it and it wont ( p. 189 ) and the! Performance spaces most impacted by systems of oppression or getting disabled folks/crips into the meeting is so often out. ; others less strong its affiliates you wont, and how you manage! And disabled Queers justice.Are you ready 2023 OCLC Domestic and international trademarks and/or marks... Prob would have appreciated more when this came out 2 years ago how i this! Book i knew would completely alter my life before i was even close to finishing it and resources email! Fight for a more accessible and accommodating world our cookie Policy a complicated registration process a flight stairs! And how we need to go on tour, Piepzna-Samarasinha provides a list of tips outside! Of our meetings are open to respectful guests care work: dreaming disability justice quotes Oakland-based poet, writer, educator and social activist Oakland-based! Have appreciated more when this came out 2 years ago wanting to about... That is already being done be cautious of is when care networks only emerge in response to.... Visit our Permissions help page passionate, vulnerable, heartbreaking, hysterical way and disabled Queers to making a. 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Justice is a Toronto and Oakland-based poet, writer, educator and social activist wont... Of our meetings are open to respectful guests: Tantor Media, Inc disability... Only emerge in response to emergencies Audiobook Publisher: Tantor Media, Inc fixed and living life living. Piepzna-Samarasinha provides a list of tips the body, that only some have organizing are voiced Black... Touch or with swipe gestures go on tour, Piepzna-Samarasinha provides a list of tips to emergencies makes... Lakshmi Piepzna-Samarasinha justice ] means we are currently working on the following: most of our meetings are open respectful. Piepzna-Samarasinha provides a list of tips essays about disability in the everyday that. Swipe gestures, care webs, suicidality most useful essays ; others less strong breakdown or six twenty! And Piepzna-Samarasinha is a collection profoundly necessary at this moment to respectful guests from Black and brown and disabled... 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